Oh my what a bad day she had yesterday. 330 I get a call from home Sarah wants to talk to you so I call her back on our cordless phone. I can tell right away this isn't going to be good. I can hear her walk into her room and close the door. Hi Baby how was your day. No answer. I repeat it. No answer. Sarah what's wrong. I don't know Momma as she has tears coming down her face... I just need you you have to come home on the 4 o'clock bus. I can't Sarah even if I left right now I wouldn't have time to make it. But Momma I need you I had a bad day please Momma. Sarah I can't now listen to me I'll be home on the 5 o'clock bus, what's wrong did something happen at school. And the only replies I get are "momma I need you I don't know why but Momma I need you" This goes on for a few more minutes then I have to be stern and tell her "momma has to work baby I have to go" no way would she listen to me. I'm at work and there is not a dam thing I can do to help her... no a thing and that bothers the hell out of me. Not to mention how disruptive these conversations are to people who are around me that can hear me... she's deaf I can't exactly whisper on the phone. I had no choice but to hang up. I told her I needed to go and that I love'd her and then I hung up. OMG I had no choice but to hang up nothing I was going to be able to say would help her get over this bad day. So I do what I normally do and text Scott to tell him what happened. He told me it was ok and I knew it was ok but it still doesn't make it any easier when it happens.
So off I go from work 45 mins later to catch my two buses. I get a text from Scott.. is she ok? I don't know I can't call her yet I'm still on the first bus. Then when I get off the first bus and walk over to catch the 2nd bus I'm alone so I call her. No she's no better.... its ok honey I'm on my way home. I need you know.. you have to wait.. i need you know... you have to wait. Please Sarah listen to me and except my answer I can't do anything better to get home to you then I am. No way would she settle down on the phone so again I hung up. God what kind of mother am I. But to sit on the phone for the next half an hour till I'm home repeating the same thing over and over again I just can't take it. So home I come and she comes running out to meet me. She's happier now that I'm home but now I'm sad, tired and exhausted. I'm glad I can make her happy but now I'm wearing the quilt of the day on my shoulders. So into the house we go and we aren't in the house 2 mins and she becomes saucy and disrespectful to everyone, screaming at the top of her lungs, telling people to shut up. OMG Sarah what is wrong with you what happened today. I don't know Momma I don't know how to say it. Then just tell me. Several hours go by and during this time she couldn't make a decision to save her life. Which book to read, help Nanny with cookies, play in the living room or in her room, what to eat for supper, what to drink.... omg this goes on forever. Sarah then does what she does when she's ready to talk... calls me into my bedroom. What happened at school today. I didn't have a good day today Momma, I know baby what happened. Oh its so hard for me to say. Just say it. By this point I'm expecting the news of a life time but I come to find out her friend didn't want to play with her and the Duty Teacher talked to her about food for her lunch. OMG guess which triggered the anxiety attack.... yup the food. Not playing with her friend meant she had to find something else to do and that's a hard lesson for any 8 year old to learn but when an adult and a stranger talks to her about food she wants to throw up and she said "momma i gagged when she told me to eat". I can tell by the tone the food did it. It just set her right off and I've already had conversations with the school.... they need to understand Sarah's brain is not wired the same as ours. Food is a general conversation with most people but to her food is associated with throwing up for hours, feeding tubes, pain, and fear. Please listen to me school... even our Dr we work with hasn't been able to get her to replace her fear of food with happiness so why do you as adults think you know any better... please stop making this child's life hell and listen to me. So the night ended with her believing she wasn't going to make it to school today... oh god only knows what her anxiety level will be in the next half an hour when I wake up her.... please let it calm down so we can get her to school today.
Happy 105th birthday Nan!
7 hours ago


